Baroness Blackwood claims patients are not being denied cannabis medicine

On the 4th of March in the House of Lords Baroness Blackwood of North Oxford made the bold claim that “patients are not being denied access” to cannabis medicine. Patients and the families of disabled children who know this was a lie are outraged. The Baroness also made the huge mistake of saying that the […]

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Mother says she may have to sell house to pay for epileptic daughter’s cannabis medicine

A mother of a seven-year-old girl with epilepsy says she may have to sell the family’s home to pay for treatment abroad because they have not been able to get a prescription on the NHS. Sam Fairlie, from Leicester, wants her daughter Maya to try Bedrocan – which Carly Barton has been prescribed on an […]

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Carly Barton pays private specialist £2,500 to become first UK patient to be prescribed cannabis in ‘strategic move to test the system’

Carly Barton, Deputy Director at United Patients Alliance, is thought to have become the first UK patient to be prescribed cannabis – but she has had to pay a private specialist £2,500 for just three months’ worth. She described it as a “strategic” move to test and expose the system. She hopes that an NHS […]

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Alfie Dingley’s cannabis medicine licence revoked, priority given to GW’s Epidiolex which won’t be licenced until May

Hannah Deacon has revealed that her son Alfie Dingley’s licence for cannabis medicine has been revoked following the 1 November law change that permits it to be prescribed by specialist doctors. Alfie was given a special licence in July after media attention around epileptic children who were having to break the law to medicate forced […]

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Update: Sophia Gibson granted life-changing cannabis licence

Sophia Gibson, the seven-year-old girl from Northern Ireland who has been in intensive care after a life-threatening epileptic seizure, has been granted a long-term licence for the use of medicinal cannabis. Sophia, from Newtownards, Co Down, has a genetic condition called Dravet syndrome, which causes what her family describe as “frequent and dangerous fits”. Her […]

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