Update: Sophia Gibson granted life-changing cannabis licence

Sophia Gibson, the seven-year-old girl from Northern Ireland who has been in intensive care after a life-threatening epileptic seizure, has been granted a long-term licence for the use of medicinal cannabis.

Sophia, from Newtownards, Co Down, has a genetic condition called Dravet syndrome, which causes what her family describe as “frequent and dangerous fits”.

Her mother, Danielle, said cannabis oil relieved the symptoms of Sophia’s condition and could drastically reduce the number and intensity of seizures.

The licence is for the use of Bedrocan whole plant medical cannabis oils, to be prescribed through the NHS by her doctors.

The decision was made on the recommendation of a panel of medical experts set up by the Home Office earlier this year to look at cases where individuals have applied for a licence to use medicinal cannabis.

Danielle Gibson said: “This decision is a life-changer and a life-saver for Sophia. But no family should have to fight this hard, for so long, for something that so obviously has a benefit.

“The fight has been exhausting but the relief is immense. We would like to thank each and every person who supported Sophia and our family through this distressing journey. The years of battling have finally paid off.”

Danielle added that she hoped others would now be able to access the treatment into the UK instead of having to go abroad. She had previously taken her daughter to the Netherlands to receive the treatment.

“We hope that following Sophia’s journey other children and adults across the UK can access the same treatment without having to uproot their lives to travel or move abroad,” she said.

“Cannabis should be rescheduled and doctors should be able to prescribe it. We hope we that the decision made today will pave the way for the many others who should have access to medical cannabis.

“We will continue to work to make it accessible for others and educate people on the use of medicinal cannabis so there isn’t a stigma or misconception surrounding it any more.

“Now Sophia can have her medicine, her life will begin to improve and we can enjoy life as a family and look forward to living a more normal family life.”

Jim Shannon MP

She thanked her MP Jim Shannon for his support, as well as Peter Carroll from the End Our Pain campaign.
Carroll said further reform was urgently required: “Sophia’s success offers hope to many hundreds who will want to access medical cannabis. But getting her application through has shown that how the panel operates needs urgent reform if other families are to benefit.

“The emphasis on having to demonstrate that medical cannabis has worked is highly unfair, as it implies that the patient should undertake the arduous journey and suffer the heavy expense of going abroad to a country in which medical cannabis is legal before making an application.

“It’s been an honour to support this family. Their dignity under the most extreme anxiety over such a period has been remarkable. Our work goes on to secure the rescheduling of cannabis.”

Earlier this month, a special licence was granted for Billy Caldwell, 12, from Castlederg, Co Tyrone, to be treated for severe epilepsy with medicinal cannabis.

A spokesman for the Department of Health in Northern Ireland said: “We can confirm a licence for medicinal use of cannabis has been issued in line with a recommendation from the expert panel.”

Alfie Dingley, six, from Warwickshire, became the first person in the UK to receive a licence to be treated with medicinal cannabis, the Home Office said.

Earlier this week, his mother, Charlotte, was allowed to enter the UK with medicinal cannabis oil for her son who has epilepsy.

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Comment (1)

  1. Until MPs,NICE,CCG,NHS and anyone else who makes important decisions learns about the Endocannabinoid System anCannabis nothing will change. I have written to Savid Javis with no response as I am not in his constituency so my MP is d

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